A Geauga County family is praying for answers to the medical mystery making their child sick. The case even has doctors baffled.
Jemmah John just got home from the hospital on Wednesday afternoon. It's one of more than a dozen visits since she was born. The latest diagnosis was a high fever she had for several days."It was just the scariest moment of my life. For a few minutes, I thought we were going to lose her," explains Jemmah's mother, Kilah John.When Jemmah was just three weeks old, she stopped breathing. Her parents, Kilah and Brandon, learned that she had two congenital heart defects.
A trip to her pediatrician showed she wasn't growing properly, and that was just the beginning of their medical mystery. "She's had three surgeries. She's had one sedated test and she's lined up for five more sedated tests and two more surgeries," says Kilah. Jemmah, at just 14 months old, has already had 25 diagnoses, including gastro, cardiac, neurologic, lung and vision problems. Yet doctors can't determine what's wrong with her.
She gets her food through a tube that goes into her stomach, and gas is pumped out to provide relief. Jemmah also takes five different medications daily.
The Burton family and doctors are perplexed by her illness."That's the hardest part, not knowing," says Kilah."It's been a rough road. We've had our ups and downs, for sure," adds Brandon. The Johns hope Jemmah can one day walk and play like her two older siblings. "We just want her to have a normal childhood. That's what anyone wants for their kid," says Kilah."I see a light at the end of the tunnel, but, I think it's going to be a little while yet," says Brandon. Later this month, Jemmah will undergo genetics test, in hopes of pinpointing a syndrome.
You can follow Jemmah's Journey here. Click here if you'd like to make a donation to help the family with medical costs.
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